Health Resources for Patients, Families, and the General Public

Genetic Alliance is a not-for-profit organization that provides information for a variety of audiences about health conditions and provides tools and advocacy to engage and empower.

A patient advocacy organization that promotes research and empowers individuals and families to bring awareness to rare health disorders. This is an organization your patrons may find very helpful as they grapple with a newly diagnosed condition or face treatment and other challenges.The primary use of NORD is the for Patients and Families tab.

The GLP's aids the public, media, and policymakers in understanding the science and implications of human and agricultural genetics and biotech.

The All of Us Research Program is a historic effort to gather data from one million or more people living in the United States to accelerate research and improve health.

The Genetic Information Nondiscrimination Act of 2008 (GINA) is a federal law that protects individuals from genetic discrimination in health insurance and employment. Genetic discrimination is the misuse of genetic information. This resource provides an introduction to GINA and its protections in health insurance and employment. It includes answers to common questions and examples to help you learn.

National Human Genome Research Institute: Whether an individual's genomic information is being used for research, clinical applications or other uses, it is important to ensure that the individual's privacy is respected. Laws and policies protect the privacy of an individual's genomic information, and there is ongoing debate as to whether further measures are needed.